When one looks back and asks:
"To whom do I owe my resurrection?", there are so many people that
come to mind.
Saraswathi (aka Ranjani) who
continues to be next to me.
My siblings -- sister
Nalini and brother Ramesh -- and their families. The former stayed close to my
parents when my treatment was on and the latter donated his stem cells to save
my life.
It
is very difficult to come across more calm and collected individuals than my
brother Ramesh and sister Nalini. Our personalities are quite different. When
it came to getting themselves HLA-typed to see if they can be candidates for
donating stem cells needed for my Leukaemia treatment -- they immediately got
it done. Whereas the probability of a sibling match is only ¼ to ⅓, both of
them matched for me! Doctors opined that being male and younger than me, my
brother was preferred. So the most difficult step and perhaps the biggest
question in any La treatment -- needing matching stem cell donors -- was
answered in my case in the affirmative with relative ease. My brother-in-law,
Shri Narayanan, a socially sensitive person, got all the necessary papers ready
just in case he and my sister had to travel to the US on short notice to help
in my treatment.
(The
probability of a non-sibling match is 1 in 20000, and so those without siblings
or have no matches with siblings invariably have a tougher future ahead of them.
Out of desperation sometimes patients and doctors resort to transplant with
partially matched donors - leading to complications later. Worse still is the
situation for those who reconcile themselves to an uncertain future waiting for
a matching donor to come by some day. Driven by these cases, Dr. Sunil Parekh, my doctor in Mumbai, started MDRI whose goal is to register future stem cell donors. Please see
"The challenge of finding stem cell donors" for more on this
movement).
Dr. Sunil Parekh was recommended to us as someone who was meticulous in his diagnosis of blood diseases and so we approached him with the first set of blood test results. We were struck by his no-nonsense, yet father-like, approach to his patients, and one who had his patients' interests first. He made us feel comfortable and described the science as well as the practice underlying blood cancer and its treatment. He was counselling us every step of the way, and even today we refer him to anyone needing help. The care and support that he provides itself puts patients at ease, and I believe helps fight the disease with more confidence. I wish there were more doctors like him.
Once my doctors at MDA agreed
to my stem cell transplant, my brother flew into Houston and submitted to a
complete physical examination and reexamination of his blood parameters. Further, to ensure that his stem cells found their way
into peripheral blood in time for the transplant -- he self-administered the prescribed booster shots for a few days. All
went well and thanks to my brother’s generosity and love, I am leading a normal
life today.
My brother-in-law (SK's
brother) Murali and his family went far above the call of duty. His being
there, with us, giving his sister solid support, allowed me to forget about the
ordeal. We will be forever indebted to him and his wife Uma. A separate entry
has been dedicated to them.
I do not know how many
friends, some whose names and faces I never knew and may never know, and many
who continue to give me the support I need to live a full life. People of
all kinds came forward to donate blood and platelets in a timely manner.
Countless people kept us in their thoughts and prayers.
My friends and colleagues from
IITB and UMass deserve special kudos for their multi-pronged engagement
with me that made sure that I had little time or need to worry about my
health issues or the costs involved.
What is common to all of these
people is that every one of them went above and beyond the need of the hour,
and for this and more, I thank them profusely, knowing fully well, that their
being there when I needed them made the difference that kept me going.
I will write later about many
of these selfless (groups of ) people in separate entries.
Our parents knew to varying degrees that a lot was amiss but did not inundate us with us with questions or dissolve into tears but focussed on prayers for a successful treatment. My father was generally oblivious of the specifics of our predicament given his own state of health; my mother knew more than my dad. My father, when I went home after the transplant, simply remarked, "what happened to all the hair on your head." I muttered something like, "Thank god, at least the head is still there!" SK's parents were somewhat more in the know, with their son staying with us for the early part of the ordeal. Both sets of parents spent most of their time praying for a successful treatment.
Finally, I credit our parents for our coming out of this situation the way we did. From raising a family with strong bonds of love, self-sacrifice, supportiveness, and instilling in us a sense of duty and leaving the rest to God.
Even today I cringe and feel sad at having given them such a hard time, and wish no parent has to ever go through the experience that they were forced to.
Our parents knew to varying degrees that a lot was amiss but did not inundate us with us with questions or dissolve into tears but focussed on prayers for a successful treatment. My father was generally oblivious of the specifics of our predicament given his own state of health; my mother knew more than my dad. My father, when I went home after the transplant, simply remarked, "what happened to all the hair on your head." I muttered something like, "Thank god, at least the head is still there!" SK's parents were somewhat more in the know, with their son staying with us for the early part of the ordeal. Both sets of parents spent most of their time praying for a successful treatment.
Finally, I credit our parents for our coming out of this situation the way we did. From raising a family with strong bonds of love, self-sacrifice, supportiveness, and instilling in us a sense of duty and leaving the rest to God.
Even today I cringe and feel sad at having given them such a hard time, and wish no parent has to ever go through the experience that they were forced to.
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